PKU is about more than food

Every year on 28 June, people around the world come together to raise awareness of PKU (Phenylketonuria). PKU is a condition that means the body cannot process an amino acid called phenylalanine, which is found in many foods. People with PKU need to follow a special diet and make careful food choices every day.

This International PKU Day, we're talking about something that doesn't get discussed as often – how PKU can affect our thoughts, feelings and wellbeing.

Traces of PKU

This year's theme is Traces of PKU.

PKU can leave its mark in different ways. It's not just about food. It can affect how we feel about ourselves, our friendships, our confidence and our everyday lives.

That's why it's important to talk about mental wellbeing and support each other along the way.

Stephanie's Story

Stephanie shares her experience of living with PKU and some of the challenges she faced. She also talks about how she found ways to get back on track and feel more like herself again. Her story is a reminder that you're not alone, and that help and support are available.

Read Stephanie's story

Small Steps Can Make a Big Difference

Sometimes it can be hard to know where to start when you're having a tough time.

The good news is that small changes can help. Things like staying active, spending time with people you care about, being kind to yourself and focusing on the positives can all support your wellbeing.

We've put together 8 simple tips to help support mental wellbeing when living with PKU. They are easy ideas that can help you feel more confident, more positive and more connected.

Discover 8 tips for mental wellbeing with PKU.