You’ve come to right place to learn more about inborn errors of metabolism like PKU or MSUD, explore diet management tips, and hear inspiring stories. From big moments, like starting college to little ones like what to eat for dinner, we have tips and ideas to help you along the way.
Please note: information presented in our blogs is for educational purposes only and is in no way intended to replace the care, advice, and medical supervision of your metabolic team. Always consult your metabolic healthcare team with questions you have and before you make any changes to your or your loved one’s diet or condition management.
To help provide an educational activity, we are proud to share a printable copy of My PKU Activity Book. This activity book is full of fun and educational coloring pages, word searches and other games to keep your school-aged child and their siblings engaged and learning about Phenylketonuria (PKU). Examples from My PKU Activity Book: […]
Learning about PKU through fun activities for kids READ MORE
Dear Nutricia Customers and Community, At Nutricia, we know that our customers, patients, and their families rely on our medical foods every day. The health and safety of our customers and patients have always been our highest priority. As the COVID- 19 situation continues to evolve, our commitment to supply, quality, and services to you
A message from our CEO at NNA on COVID-19 READ MORE
Dining out can seem tough on a low protein diet, but it’s not impossible. Here are some helpful tips for going out, including what to look out for and how to prepare for a fun time on the town. Plan ahead as much as possibleIf you can, view the menu online ahead of time. Call
Tips for Dining Out on a Low Protein Diet READ MORE
12 marathons, 19 half marathons, 100-mile bike rides, and triathlons: Kristin Rapp’s athletic achievements are impressive. What’s more is that Kristin has Homocystinuria (HCU) and manages the low protein diet while training. How does she do it? What keeps her motivated? We sat down with Kristin to answer this and more. Kristin was diagnosed with
When you reach your third trimester (after 26 weeks) you are now in the final countdown. With only 3 months to go, you will notice significant changes in your body and PKU diet. For some, your permitted protein intake may increase. Continue to be in close contact with your metabolic clinic. If you are not
3rd Trimester Support for Maternal PKU READ MORE
Week 13 through 26 is considered the second trimester of your pregnancy. View PKU & Pregnancy: What to Expect blog here View Low Protein Diet Tips To Help You Get Through The 1st Trimester Of Pregnancy blog here During this time, you will continue to work closely with your clinic as only they can provide
Maintaining PHE levels during your 2nd trimester of pregnancy READ MORE
Congratulations on your pregnancy! These are exciting times. Don’t forget, working closely with your clinic is important before, during and after pregnancy. Your clinic can provide the best guidance for you and your baby. Once your blood phenylalanine (PHE) levels are well-controlled and you become pregnant you enter the first of three trimesters associated with
Low protein diet tips to help you get through the 1st trimester of pregnancy READ MORE
We talked about general topics of sports nutrition in our last blog — let’s now discuss what is important BEFORE, DURING and AFTER exercise for people with an inborn error of amino acid metabolism such as Phenylketonuria (PKU), Maple Syrup Urine Disease (MSUD) or Homocystinuria (HCU). Before getting started, it is important to know that
Participating in sports and fitness provides many benefits for health and wellbeing—and this holds true for many people with inherited metabolic disorders. Plenty of members of the metabolic community run races, dance, and play team sports to stay fit. James, a college sophomore with Phenylketonuria (PKU), for example, plays club soccer. (Read our interview with
The holidays can be an exciting time of year. However, they can be a bit challenging for someone on a restricted diet as most festivities center around food. This blog focuses on tips for managing a restricted diet during the holiday season. The most important thing to do is plan ahead. The more you know
Tips for a Low Pro Thanksgiving READ MORE
