We all want to explore the world — and our PKU and low-protein diets shouldn’t stop us from doing so. I’ve travelled extensively and made plenty of mistakes along the way! Let me start by saying this: the tips in this article should never replace the advice your dietitian gives you. Your care team is always your first point of contact for everything related to your diet and nutrition.
With that in mind, here are some of my top travel tips for living life to the fullest with PKU.
Tip 1: Choose your destination wisely
If you are new to travelling, it’s best to start with short, local trips before taking longer journeys. This helps build confidence and allows you to learn what works for you.
Language barriers can make communication about PKU needs more difficult, so choose destinations that match your experience, confidence, and comfort level. Remember, technology is on your side — translation apps can make travelling in foreign countries much easier.
Tip 2: Ask for a doctor's certificate
Once your trip is booked, ask your doctor or dietitian for a medical statement confirming that you have a hereditary metabolic condition and require a specialised low-protein diet. Having this document can make things smoother when travelling with medical foods or protein substitutes.
Tip 3: Communicate your needs in advance
When you book your flight, request a vegan or vegetarian meal so that there will be options available that better suit your diet.
Contact your accommodation ahead of time to inform them about your dietary needs, and send them a copy of your doctor’s note. Providing a translated version for local restaurants can also help ensure they understand your requirements and can prepare suitable meals.
Tip 4: Pack smart
How you pack will depend on your baggage allowance and the length of your stay. I always carry:
- A shaker bottle and powdered protein substitute to save space
- Ready-to-drink protein substitutes
- Filling, low-protein snacks
- Ready-to-eat foods in my carry-on luggage for longer flight.
Things don’t always go according to plan, so make sure you pack extra. I also take lightweight foods such as low-protein pasta — restaurants are often happy to cook it for you with a simple vegan sauce.
Tip 5: Do your homework
Ask other people with PKU for recommendations on Phe-friendly restaurants or local products. Check sites like TripAdvisor for vegan or vegetarian restaurants — just remember to avoid high-protein ingredients such as nuts, tofu, seitan, and legumes.
If nothing suitable is available, you can usually find a simple salad or portion of chips to keep you going.
Tip 6: Look for gluten-free and vegan options
The global vegan and gluten-free movement has made it easier than ever to find suitable foods. Many of these options are naturally low in Phe and can be adapted for a PKU-friendly diet.
However, always check the ingredients — avoid protein-rich foods such as nuts, tofu, legumes, and seitan.
Tip 7: Listen to your body
As always, listen to your body and rest when needed. If you experience symptoms such as fatigue or difficulty concentrating, take time to recover with nutritious, low-protein meals.
You can also contact local PKU organisations for advice or support if needed.
Tip 8: Treat yourself — but make healthy choices
Enjoy the occasional treat while you travel! However, try not to rely too heavily on sugary foods, as they can cause fluctuations in energy and mood. Choose balanced snacks that keep your energy levels stable — no one wants to feel tired or irritable while exploring.
Tip 9: Enjoy!
Now that you’re prepared for your adventure, there’s only one thing left to do — enjoy it! Make memories, take photos, and remind yourself that you only live once.
With good planning and preparation, you can keep your Phe levels under control and feel great while making memories that last a lifetime.
Dalibor Dujmic has PKU and works closely with the Nutricia Metabolics team and the PKU community to demonstrate that a phenomenal life is possible with a low-protein diet.
