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The Importance of Nutrition for Kids With PKU

The Nutrition you Need, The Taste You Deserve! Managing phenylketonuria (PKU) goes far beyond simply restricting phenylalanine (PHE) intake. While keeping blood phenylalanine levels low is essential for brain health and function, it’s also important to focus on your child’s overall nutritional needs. Children with PKU require a balanced diet to support growth, development, and […]

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PKU: Building Your child’s Independence Through their Low Protein diet

If you’re a parent of a child with phenylketonuria (PKU), a genetic metabolic condition, you know how much care and planning goes into managing their diet. Finding foods with limited phenylalanine (PHE), preparing meals, and making sure they drink their PKU formula all play an important role in their growth and development. Every bite of

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Traveling with Metabolic Formula – Tips for Your Next Trip

Planning a family vacation with family or friends? Family vacations are a fun way to spend time with loved ones and make lasting memories. Whether you are going away for a short local break or a long trip abroad, traveling on a low protein diet required for metabolic disorders such as phenylketonuria (PKU), homocystinuria (HCU)

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Navigating Halloween Fun: A Guide for Children on a Low Protein Diet

Halloween is a fun time for kids who get to dress up in costumes, see spooky decorations, and get lots of yummy treats. However, if you eat a low-protein diet because of a special health condition, Halloween can be a bit tricky. In this blog post, we’ll share some helpful tips and fun ideas to

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Metabolic Tips for Parents Video Series – Part 1

Preparing Your Baby’s Bottle Congratulations on your new addition! Your new little bundle of joy brings an exciting new future, and probably many, many questions. We are here to help. We’ve created a Metabolic Tips for Parents series of ten short videos to help ease your journey. In each episode, our medical affairs advisor, Rachel

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Heather and her daughter

Helpful ways to prepare for back-to-school for a 7th grader with PKU

Tips and wisdom from a parent of a PKU 7th grader “I feel like I’m pulled in four different directions all summer!” says Heather Bomar of Brentwood, Tennessee, in describing her busy but fun summer season. Her four children, including 12-year-old Ellis who has classical Phenylketonuria (PKU), do a variety of activities over the summer.

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