You’ve come to right place to learn more about inborn errors of metabolism like PKU or MSUD, explore diet management tips, and hear inspiring stories. From big moments, like starting college to little ones like what to eat for dinner, we have tips and ideas to help you along the way.
Please note: information presented in our blogs is for educational purposes only and is in no way intended to replace the care, advice, and medical supervision of your metabolic team. Always consult your metabolic healthcare team with questions you have and before you make any changes to your or your loved one’s diet or condition management.
“When I got the call, I couldn’t process what I was hearing. It was so hard.” Lacy thinks back to the moment when she learned that her second child, a baby girl named Aspen, was diagnosed with Phenylketonuria (PKU). PKU is a rare inherited metabolic disorder that means a person must avoid foods naturally high […]
A family’s journey in learning about PKU through baby Aspen READ MORE
Just because you have a metabolic condition like phenylketonuria (PKU), maple syrup urine disease (MSUD), homocystinuria (HCU), or another inborn error of metabolism disorder doesn’t mean you can’t order restaurant food. Here are helpful tips for navigating common restaurant menus in the U.S. and Canada and finding low protein options that fit your diet. Remember
Restaurant Food Guides: Common Low Protein Options on Restaurant Menus READ MORE
Monitoring your baby’s blood phenylalanine (PHE) levels is an important part of managing PKU and helping your child thrive. Keeping blood PHE levels within the target range leads to normal growth and brain functions. If blood PHE levels are too high over an extended period, it may affect the brain. If PHE levels are too
Monitoring Your Baby’s PHE Levels READ MORE
Obtaining health insurance coverage for metabolic formula can be stressful in our current times. You may have experienced challenges in getting your formula covered, such as loss of coverage due to an employment change, dropped coverage due to age, and the list goes on. We understand how complicated it can be. That’s why Nutricia Navigator
Helping Families Find Formula Coverage: Nutricia Navigator READ MORE
When your child has a metabolic disorder, the idea of daycare can feel stressful and overwhelming. Rest assured that young children with metabolic disorders go to daycare every day and receive excellent care! A child with a special diet is nothing new to daycare centers nowadays. Daycares typically have protocols in place to ensure your
Sending Your Child to Daycare with a Special Diet READ MORE
Friends are so important to have in your life. Deciding to tell people that you have an inborn error of metabolism – such as phenylketonuria (PKU), maple syrup urine disease (MSUD), homocystinuria (HCU), or another condition – is a personal decision. We’re here to help if you feel like opening up to your friends about
How to Explain Your Metabolic Disorder to Friends READ MORE
Being off the PKU diet leads to high phenylalanine (PHE) levels and is associated with a variety of symptoms, such as feeling tired, irritable and forgetful. This is how Rene felt before he went back on the PKU diet as an adult. We met up with Rene in his home in San Diego, CA to
Find out how Rene returned to the PKU diet READ MORE
Wait, wait! Don’t throw out your formula can yet! You can reuse your Nutricia Metabolics formula cans for arts & crafts and more! First, fully clean out the can. Second, follow our easy and fun tips below. Be sure to clean your cans out thoroughly before reusing them. We recommend wiping out the cans with
Upcycling Metabolic Formula Cans READ MORE
To help provide an educational activity, we are proud to share a printable copy of My PKU Activity Book. This activity book is full of fun and educational coloring pages, word searches and other games to keep your school-aged child and their siblings engaged and learning about Phenylketonuria (PKU). Examples from My PKU Activity Book:
Learning about PKU through fun activities for kids READ MORE
Dear Nutricia Customers and Community, At Nutricia, we know that our customers, patients, and their families rely on our medical foods every day. The health and safety of our customers and patients have always been our highest priority. As the COVID- 19 situation continues to evolve, our commitment to supply, quality, and services to you
A message from our CEO at NNA on COVID-19 READ MORE
