You’ve come to right place to learn more about inborn errors of metabolism like PKU or MSUD, explore diet management tips, and hear inspiring stories. From big moments, like starting college to little ones like what to eat for dinner, we have tips and ideas to help you along the way.
Please note: information presented in our blogs is for educational purposes only and is in no way intended to replace the care, advice, and medical supervision of your metabolic team. Always consult your metabolic healthcare team with questions you have and before you make any changes to your or your loved one’s diet or condition management.
Halloween is a fun time for kids who get to dress up in costumes, see spooky decorations, and get lots of yummy treats. However, if you eat a low-protein diet because of a special health condition, Halloween can be a bit tricky. In this blog post, we’ll share some helpful tips and fun ideas to …
Navigating Halloween Fun: A Guide for Children on a Low Protein Diet READ MORE
If you are just tuning in to our Low Protein Living blog, this is the final part of the Metabolic Tips for Parents, a series of ten short videos to help ease your metabolic disorder journey. The highlighted videos below focus on a few feeding topics you may encounter as your infant grows into a …
Starting Your Baby on Solids Introducing solid foods to your baby presents a unique opportunity for your little one to explore new foods and tastes. From the yummy faces to the yucky faces, it’s a fun time for you to engage with your infant. These 3 short videos from our Metabolic Tips for Parents video …
Preparing Your Baby’s Bottle Congratulations on your new addition! Your new little bundle of joy brings an exciting new future, and probably many, many questions. We are here to help. We’ve created a Metabolic Tips for Parents series of ten short videos to help ease your journey. In each episode, our medical affairs advisor, Rachel …
Happy Summer! We have worked hard to overcome our ingredient supply challenges and are excited to share with you the product updates that are coming over the next few months. The changes will allow us to continue to support you now and for years to come. Below is an overview of the changes by product …
Support for your child from the Early Years and beyond Caring for a little one with a metabolic disorder can be overwhelming. From mixing formula to starting solids, there’s always something new on the horizon. Having access to the right resources will make it easier for you to spend more time exploring and making memories …
Introducing: Metabolic Tips for Parents Video Series READ MORE
We are proud to help raise awareness for PKU (phenylketonuria) during the month of May by sponsoring a Push-Ups for PKU Challenge! Help Us Raise Awareness for PKU From May 1 to 31, Nutricia will donate $10 for each video you post on Facebook or Instagram of you doing (or trying to do!) at least …
Important information from Nutricia North America regarding our US Metabolic product portfolio including low protein foods.
Help get the daily PKU formula you need in a tablet form. Find top 10 reasons to try Phlexy-10 Tablets for PKU.
Tips and wisdom from a parent of a PKU 7th grader “I feel like I’m pulled in four different directions all summer!” says Heather Bomar of Brentwood, Tennessee, in describing her busy but fun summer season. Her four children, including 12-year-old Ellis who has classical Phenylketonuria (PKU), do a variety of activities over the summer. …
Helpful ways to prepare for back-to-school for a 7th grader with PKU READ MORE
Reflections from a rising sophomore managing PKU and a busy schedule This time last year as James Fryer was beginning his first year of college at Willamette University, he knew he was heading into a big life transition. Some of the adjustments proved more stressful than he anticipated. “Always remembering, on my own, to have …
Tips from college student on how to maintain a low protein diet while at school READ MORE
Starting at a new school is a time of excitement and nervousness for every child and his/her parents. As a parent of a child with a metabolic disorder, you might feel overwhelmed by the task of preparing your child to start school. However, with good planning and clear communication between your family, the school, and …
Parents of children and children with PKU, MSUD and HCU share how they talk about their metabolic disorder Nutricia North America’s podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of …
Exploring new fruits and vegetables can add excitement and variety to a low protein diet. Most fruits and vegetables are naturally low in protein and fit well into a low protein diet. Many of the fruits and vegetables we once considered exotic are now available at most grocery stores. Trying new foods opens the door …
Exploring low protein exotic fruits and vegetables READ MORE
Parents of children with PKU, MSUD and HCU share their experiences with adapting to a special low protein diet Nutricia North America’s podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories …
Accepting And Thriving With HCU – An Interview With The Sullivan Family Nutricia North America’s new podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors of metabolism. Our …
Written by Guest Blogger, Julia Orsi, Adult and Mom with PKU.
Growing up with MSUD – an interview with 8-year-old Carter Coleman & his parents Nutricia North America’s new podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors of …
Chef Natalie explains: “How many of you know what this is? If you don’t, it’s a jackfruit. Jackfruit is a relative of figs and breadfruit. It grows in the tropical areas of places like Asia, Brazil and Africa. It’s technically a fruit but it has a very meaty texture. It’s low in protein and can …
Raising Young Children With PKU – An Interview With Lacy Shaffer And Julie Bolduc Defilippo Nutricia North America’s new podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors …
Nutricia North America’s podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors of metabolism. Our guests on the show share their difficulties at diagnosis, changes they made to …
From little moments to big ones, we’re here for you Nutricia is proud to launch our newly redesigned NutriciaMetabolics.com website, formerly known as MedicalFood.com. NutriciaMetabolics.com has been rebuilt with you in mind. Our aim is to provide the Metabolic community with support from the littlest moments in life to the biggest ones. Here are a …
Nutricia is by your family’s side following your baby’s diagnosis of an inborn error of metabolism: our Periflex®/Anamix® Early Years metabolic infant formulas are used and trusted in 25 countries, and we’re here with all-around support to give your little one the best start in life. Nutricia is committed to supporting your little one with …
The Early Years: Giving Your Little One the Best Start in Life READ MORE
Can you remember the last time you checked the expiration dates on the food you have in your pantry or in the back of your refrigerator? If you can’t remember, this might be a good time to go and check. We often get questions on using expired product and if it’s still safe. Our advice …
Calcium is a mineral best known for its role in bone health. In fact, the body stores more than 99% of calcium in bones and teeth to keep them strong.1 Calcium also plays a key role in other important functions of the body. Your body uses calcium to help move your muscles and your blood, …
Written in collaboration with Katie Maguire, PKU Adult and 2nd grade schoolteacher Lunch anxiety? Anxious that your child will not eat her lunch or drink formula at school? Here are some quick ideas that you can do to prepare and hopefully ease some anxiety: Pack the lunchbox and practice eating at home; make sure your child …
Raise Awareness for PKU this May Nutricia North America is proud to support PKU Awareness Month this May by sponsoring a Push-Ups for PKU Challenge! From May 1 to 31, Nutricia will donate $10 for each video you post on Facebook or Instagram of you doing (or trying to do!) at least 5 push-ups. The …
“When I got the call, I couldn’t process what I was hearing. It was so hard.” Lacy thinks back to the moment when she learned that her second child, a baby girl named Aspen, was diagnosed with Phenylketonuria (PKU). PKU is a rare inherited metabolic disorder that means a person must avoid foods naturally high …
A family’s journey in learning about PKU through baby Aspen READ MORE
Just because you have a metabolic condition like phenylketonuria (PKU), maple syrup urine disease (MSUD), homocystinuria (HCU), or another inborn error of metabolism disorder doesn’t mean you can’t order restaurant food. Here are helpful tips for navigating common restaurant menus in the U.S. and Canada and finding low protein options that fit your diet. Remember …
Restaurant Food Guides: Common Low Protein Options on Restaurant Menus READ MORE
Monitoring your baby’s blood phenylalanine (PHE) levels is an important part of managing PKU and helping your child thrive. Keeping blood PHE levels within the target range leads to normal growth and brain functions. If blood PHE levels are too high over an extended period, it may affect the brain. If PHE levels are too …
