Low Pro Living Support Blog

You’ve come to right place to learn more about inborn errors of metabolism like PKU or MSUD, explore diet management tips, and hear inspiring stories. From big moments, like starting college to little ones like what to eat for dinner, we have tips and ideas to help you along the way.

Please note: information presented in our blogs is for educational purposes only and is in no way intended to replace the care, advice, and medical supervision of your metabolic team. Always consult your metabolic healthcare team with questions you have and before you make any changes to your or your loved one’s diet or condition management.

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Caring for Rare Podcast: Season 1, Episode 4

Parents of children with PKU, MSUD and HCU share their experiences with adapting to a special low protein diet Nutricia North America’s podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories …

Caring for Rare Podcast: Season 1, Episode 4 READ MORE

Caring For Rare Podcast: Season 1, Episode 3

Accepting And Thriving With HCU – An Interview With The Sullivan Family Nutricia North America’s new podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors of metabolism. Our …

Caring For Rare Podcast: Season 1, Episode 3 READ MORE

Podcast Episode 2

Caring for rare podcast: season 1, episode 2

Growing up with MSUD – an interview with 8-year-old Carter Coleman & his parents Nutricia North America’s new podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors of …

Caring for rare podcast: season 1, episode 2 READ MORE

Caring for rare podcast: season 1, episode 1

Raising Young Children With PKU – An Interview With Lacy Shaffer And Julie Bolduc Defilippo Nutricia North America’s new podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors …

Caring for rare podcast: season 1, episode 1 READ MORE

Caring for Rare Podcast

Nutricia North America’s podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors of metabolism. Our guests on the show share their difficulties at diagnosis, changes they made to …

Caring for Rare Podcast READ MORE

Introducing NutriciaMetabolics.com

From little moments to big ones, we’re here for you Nutricia is proud to launch our newly redesigned NutriciaMetabolics.com website, formerly known as MedicalFood.com. NutriciaMetabolics.com has been rebuilt with you in mind. Our aim is to provide the Metabolic community with support from the littlest moments in life to the biggest ones. Here are a …

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Aspen and Finn seated on the ground

The Early Years: Giving Your Little One the Best Start in Life

Nutricia is by your family’s side following your baby’s diagnosis of an inborn error of metabolism: our Periflex®/Anamix® Early Years metabolic infant formulas are used and trusted in 25 countries, and we’re here with all-around support to give your little one the best start in life. Nutricia is committed to supporting your little one with …

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PKU Family

A family’s journey in learning about PKU through baby Aspen

“When I got the call, I couldn’t process what I was hearing. It was so hard.” Lacy thinks back to the moment when she learned that her second child, a baby girl named Aspen, was diagnosed with Phenylketonuria (PKU). PKU is a rare inherited metabolic disorder that means a person must avoid foods naturally high …

A family’s journey in learning about PKU through baby Aspen READ MORE

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Restaurant Food Guides: Common Low Protein Options on Restaurant Menus

Just because you have a metabolic condition like phenylketonuria (PKU), maple syrup urine disease (MSUD), homocystinuria (HCU), or another inborn error of metabolism disorder doesn’t mean you can’t order restaurant food. Here are helpful tips for navigating common restaurant menus in the U.S. and Canada and finding low protein options that fit your diet. Remember …

Restaurant Food Guides: Common Low Protein Options on Restaurant Menus READ MORE

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Helping Families Find Formula Coverage: Nutricia Navigator

Obtaining health insurance coverage for metabolic formula can be stressful in our current times. You may have experienced challenges in getting your formula covered, such as loss of coverage due to an employment change, dropped coverage due to age, and the list goes on. We understand how complicated it can be. That’s why Nutricia Navigator …

Helping Families Find Formula Coverage: Nutricia Navigator READ MORE

bookshelf with books and toys at daycare

Sending Your Child to Daycare with a Special Diet

When your child has a metabolic disorder, the idea of daycare can feel stressful and overwhelming. Rest assured that young children with metabolic disorders go to daycare every day and receive excellent care! A child with a special diet is nothing new to daycare centers nowadays. Daycares typically have protocols in place to ensure your …

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Two female friends joking around and eating fruit in a kitchen

How to Explain Your Metabolic Disorder to Friends

Friends are so important to have in your life. Deciding to tell people that you have an inborn error of metabolism – such as phenylketonuria (PKU), maple syrup urine disease (MSUD), homocystinuria (HCU), or another condition – is a personal decision. We’re here to help if you feel like opening up to your friends about …

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PKU activity book cover

Learning about PKU through fun activities for kids

To help provide an educational activity, we are proud to share a printable copy of My PKU Activity Book. This activity book is full of fun and educational coloring pages, word searches and other games to keep your school-aged child and their siblings engaged and learning about Phenylketonuria (PKU). Examples from My PKU Activity Book: …

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Kristin Rapp with medal

Running on Inspiration: Learn how Kristin manages her HCU disorder during marathon training

12 marathons, 19 half marathons, 100-mile bike rides, and triathlons: Kristin Rapp’s athletic achievements are impressive. What’s more is that Kristin has Homocystinuria (HCU) and manages the low protein diet while training. How does she do it? What keeps her motivated? We sat down with Kristin to answer this and more. Kristin was diagnosed with …

Running on Inspiration: Learn how Kristin manages her HCU disorder during marathon training READ MORE

Pregnancy and PKU 2nd trimester booklet

Maintaining PHE levels during your 2nd trimester of pregnancy

Week 13 through 26 is considered the second trimester of your pregnancy. View PKU & Pregnancy: What to Expect blog here View Low Protein Diet Tips To Help You Get Through The 1st Trimester Of Pregnancy blog here During this time, you will continue to work closely with your clinic as only they can provide …

Maintaining PHE levels during your 2nd trimester of pregnancy READ MORE

Pregnancy and PKU 1st trimester Cover

Low protein diet tips to help you get through the 1st trimester of pregnancy

Congratulations on your pregnancy! These are exciting times. Don’t forget, working closely with your clinic is important before, during and after pregnancy. Your clinic can provide the best guidance for you and your baby. Once your blood phenylalanine (PHE) levels are well-controlled and you become pregnant you enter the first of three trimesters associated with …

Low protein diet tips to help you get through the 1st trimester of pregnancy READ MORE

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Sports Nutrition Basics for Active Individuals with Disorders of Amino Acid Metabolism – Part 2

We talked about general topics of sports nutrition in our last blog — let’s now discuss what is important BEFORE, DURING and AFTER exercise for people with an inborn error of amino acid metabolism such as Phenylketonuria (PKU), Maple Syrup Urine Disease (MSUD) or Homocystinuria (HCU). Before getting started, it is important to know that …

Sports Nutrition Basics for Active Individuals with Disorders of Amino Acid Metabolism – Part 2 READ MORE

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