If you are just tuning in to our Low Protein Living blog, this is the final part of the Metabolic Tips for Parents, a series of ten short videos to help ease your metabolic disorder journey. The highlighted videos below focus on a few feeding topics you may encounter as your infant grows into a …
Starting Your Baby on Solids Introducing solid foods to your baby presents a unique opportunity for your little one to explore new foods and tastes. From the yummy faces to the yucky faces, it’s a fun time for you to engage with your infant. These 3 short videos from our Metabolic Tips for Parents video …
Preparing Your Baby’s Bottle Congratulations on your new addition! Your new little bundle of joy brings an exciting new future, and probably many, many questions. We are here to help. We’ve created a Metabolic Tips for Parents series of ten short videos to help ease your journey. In each episode, our medical affairs advisor, Rachel …
Support for your child from the Early Years and beyond Caring for a little one with a metabolic disorder can be overwhelming. From mixing formula to starting solids, there’s always something new on the horizon. Having access to the right resources will make it easier for you to spend more time exploring and making memories …
Introducing: Metabolic Tips for Parents Video Series READ MORE
Tips and wisdom from a parent of a PKU 7th grader “I feel like I’m pulled in four different directions all summer!” says Heather Bomar of Brentwood, Tennessee, in describing her busy but fun summer season. Her four children, including 12-year-old Ellis who has classical Phenylketonuria (PKU), do a variety of activities over the summer. …
Helpful ways to prepare for back-to-school for a 7th grader with PKU READ MORE
Starting at a new school is a time of excitement and nervousness for every child and his/her parents. As a parent of a child with a metabolic disorder, you might feel overwhelmed by the task of preparing your child to start school. However, with good planning and clear communication between your family, the school, and …
Parents of children and children with PKU, MSUD and HCU share how they talk about their metabolic disorder Nutricia North America’s podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of …
Parents of children with PKU, MSUD and HCU share their experiences with adapting to a special low protein diet Nutricia North America’s podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories …
Accepting And Thriving With HCU – An Interview With The Sullivan Family Nutricia North America’s new podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors of metabolism. Our …
Growing up with MSUD – an interview with 8-year-old Carter Coleman & his parents Nutricia North America’s new podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors of …
Raising Young Children With PKU – An Interview With Lacy Shaffer And Julie Bolduc Defilippo Nutricia North America’s new podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors …
Nutricia is by your family’s side following your baby’s diagnosis of an inborn error of metabolism: our Periflex®/Anamix® Early Years metabolic infant formulas are used and trusted in 25 countries, and we’re here with all-around support to give your little one the best start in life. Nutricia is committed to supporting your little one with …
The Early Years: Giving Your Little One the Best Start in Life READ MORE
Calcium is a mineral best known for its role in bone health. In fact, the body stores more than 99% of calcium in bones and teeth to keep them strong.1 Calcium also plays a key role in other important functions of the body. Your body uses calcium to help move your muscles and your blood, …
Written in collaboration with Katie Maguire, PKU Adult and 2nd grade schoolteacher Lunch anxiety? Anxious that your child will not eat her lunch or drink formula at school? Here are some quick ideas that you can do to prepare and hopefully ease some anxiety: Pack the lunchbox and practice eating at home; make sure your child …
“When I got the call, I couldn’t process what I was hearing. It was so hard.” Lacy thinks back to the moment when she learned that her second child, a baby girl named Aspen, was diagnosed with Phenylketonuria (PKU). PKU is a rare inherited metabolic disorder that means a person must avoid foods naturally high …
A family’s journey in learning about PKU through baby Aspen READ MORE
Monitoring your baby’s blood phenylalanine (PHE) levels is an important part of managing PKU and helping your child thrive. Keeping blood PHE levels within the target range leads to normal growth and brain functions. If blood PHE levels are too high over an extended period, it may affect the brain. If PHE levels are too …
When your child has a metabolic disorder, the idea of daycare can feel stressful and overwhelming. Rest assured that young children with metabolic disorders go to daycare every day and receive excellent care! A child with a special diet is nothing new to daycare centers nowadays. Daycares typically have protocols in place to ensure your …
To help provide an educational activity, we are proud to share a printable copy of My PKU Activity Book. This activity book is full of fun and educational coloring pages, word searches and other games to keep your school-aged child and their siblings engaged and learning about Phenylketonuria (PKU). Examples from My PKU Activity Book: …
Learning about PKU through fun activities for kids READ MORE
Brady and Quinn drink PhenylAde® GMP Drink Mix and start owning their PKU diets Do you remember the moment you got the call about your child having an inborn error of metabolism? In this video, Allyson Mullen shares her heartfelt story about that moment. Her sons Brady and Quinn received classical Phenylketonuria (PKU) diagnoses, which …
Do you have questions about inborn errors of metabolism like PKU, MSUD, or MMA/PA? We’re here to support you with easy-to-understand education tools. As part of our Nutricia Connect support platform, we offer easy-to-understand education materials that provide information on complex disorders like PKU, MSUD, and others. We’re here to support you as you educate …
Education Tools to Help you Understand PKU and other Metabolic Disorders READ MORE
Always consult your metabolic healthcare professional before introducing new foods or making any changes to your child’s diet. Introducing solids is an exciting time in your baby’s development, but it may come with some anxiety for you. That’s completely normal! The American Academy of Pediatrics (AAP) currently recommends gradually introducing solid foods when a baby is …
