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Podcast Episode 2

Caring for rare podcast: season 1, episode 2

Growing up with MSUD – an interview with 8-year-old Carter Coleman & his parents Nutricia North America’s new podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors of …

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Caring for rare podcast: season 1, episode 1

Raising Young Children With PKU – An Interview With Lacy Shaffer And Julie Bolduc Defilippo Nutricia North America’s new podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors …

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Aspen and Finn seated on the ground

The Early Years: Giving Your Little One the Best Start in Life

Nutricia is by your family’s side following your baby’s diagnosis of an inborn error of metabolism: our Periflex®/Anamix® Early Years metabolic infant formulas are used and trusted in 25 countries, and we’re here with all-around support to give your little one the best start in life. Nutricia is committed to supporting your little one with …

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PKU Family

A family’s journey in learning about PKU through baby Aspen

“When I got the call, I couldn’t process what I was hearing. It was so hard.” Lacy thinks back to the moment when she learned that her second child, a baby girl named Aspen, was diagnosed with Phenylketonuria (PKU). PKU is a rare inherited metabolic disorder that means a person must avoid foods naturally high …

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bookshelf with books and toys at daycare

Sending Your Child to Daycare with a Special Diet

When your child has a metabolic disorder, the idea of daycare can feel stressful and overwhelming. Rest assured that young children with metabolic disorders go to daycare every day and receive excellent care! A child with a special diet is nothing new to daycare centers nowadays. Daycares typically have protocols in place to ensure your …

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PKU activity book cover

Learning about PKU through fun activities for kids

To help provide an educational activity, we are proud to share a printable copy of My PKU Activity Book. This activity book is full of fun and educational coloring pages, word searches and other games to keep your school-aged child and their siblings engaged and learning about Phenylketonuria (PKU). Examples from My PKU Activity Book: …

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Heather and her daughter

Helpful ways to prepare for back-to-school for a 7th grader with PKU

Tips and wisdom from a parent of a PKU 7th grader “I feel like I’m pulled in four different directions all summer!” says Heather Bomar of Brentwood, Tennessee, in describing her busy but fun summer season. Her four children, including 12-year-old Ellis who has classical Phenylketonuria (PKU), do a variety of activities over the summer. …

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Illustration of doctor shaking hands with parents holding a baby

Education Tools to Help you Understand PKU and other Metabolic Disorders

Do you have questions about inborn errors of metabolism like PKU, MSUD, or MMA/PA? We’re here to support you with easy-to-understand education tools. As part of our Nutricia Connect support platform, we offer easy-to-understand education materials that provide information on complex disorders like PKU, MSUD, and others. We’re here to support you as you educate …

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Mom and daughter, being silly, putting flour on each other's nose in a kitchen

A Love for Pasta

After an afternoon of shopping for all new teal colored outfits for my daughter, I came home to a very upset little girl. I somehow missed when her favorite color changed from teal to blue. I also seemed to have missed when she stopped liking apples for a snack. I ended up eating a lot …

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Baby Eating

Introducing solid foods to your baby

Always consult your metabolic healthcare professional before introducing new foods or making any changes to your child’s diet. Introducing solids is an exciting time in your baby’s development, but it may come with some anxiety for you. That’s completely normal! The American Academy of Pediatrics (AAP) currently recommends gradually introducing solid foods when a baby is …

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