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Podcast Episode 2

Caring for rare podcast: season 1, episode 2

Growing up with MSUD – an interview with 8-year-old Carter Coleman & his parents Nutricia North America’s new podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors of …

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Caring for rare podcast: season 1, episode 1

Raising Young Children With PKU – An Interview With Lacy Shaffer And Julie Bolduc Defilippo Nutricia North America’s new podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors …

Caring for rare podcast: season 1, episode 1 READ MORE

Caring for Rare Podcast

Nutricia North America’s podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors of metabolism. Our guests on the show share their difficulties at diagnosis, changes they made to …

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PKU Family

A family’s journey in learning about PKU through baby Aspen

“When I got the call, I couldn’t process what I was hearing. It was so hard.” Lacy thinks back to the moment when she learned that her second child, a baby girl named Aspen, was diagnosed with Phenylketonuria (PKU). PKU is a rare inherited metabolic disorder that means a person must avoid foods naturally high …

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Kristin Rapp with medal

Running on Inspiration: Learn how Kristin manages her HCU disorder during marathon training

12 marathons, 19 half marathons, 100-mile bike rides, and triathlons: Kristin Rapp’s athletic achievements are impressive. What’s more is that Kristin has Homocystinuria (HCU) and manages the low protein diet while training. How does she do it? What keeps her motivated? We sat down with Kristin to answer this and more. Kristin was diagnosed with …

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