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PKU Family

A family’s journey in learning about PKU through baby Aspen

“When I got the call, I couldn’t process what I was hearing. It was so hard.” Lacy thinks back to the moment when she learned that her second child, a baby girl named Aspen, was diagnosed with Phenylketonuria (PKU). PKU is a rare inherited metabolic disorder that means a person must avoid foods naturally high …

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Kristin Rapp with medal

Running on Inspiration: Learn how Kristin manages her HCU disorder during marathon training

12 marathons, 19 half marathons, 100-mile bike rides, and triathlons: Kristin Rapp’s athletic achievements are impressive. What’s more is that Kristin has Homocystinuria (HCU) and manages the low protein diet while training. How does she do it? What keeps her motivated? We sat down with Kristin to answer this and more. Kristin was diagnosed with …

Running on Inspiration: Learn how Kristin manages her HCU disorder during marathon training READ MORE

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