Nutricia North America’s podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors of metabolism. Our guests on the show share their difficulties at diagnosis, changes they made to adapt to condition management, everyday joys, and more.
Though these disorders are rare, it is possible to find community and support. We hope you’ll feel comfort and connection in the stories of Caring for Rare. Listen in this trailer and hear from the families directly. Then come back to each episode for more!
Caring for Rare is accessible through:
Note: the interviews and anecdotes featured in these podcast episodes may not be representative of all rare metabolic disorders, and this podcast in no way replaces the guidance and supervision of metabolic healthcare professionals. Always consult your metabolic healthcare team prior to making any changes to diet or condition management. Guests on Caring for Rare are compensated for their time.
Episode 1: Moms Lacy And Julie: Raising Children With Phenylketonuria (PKU)
Forming community is essential for many people and caregivers living with rare metabolic disorders. In this episode, moms Lacy and Julie, who didn’t know each other previously, tell their stories of bringing up children with phenylketonuria (PKU). They cover navigating their children’s special diets with family and friends, dealing with feelings of isolation, as well as the joys of watching their children grow from babies to personality-filled kids!
This episode was produced by Alletta Cooper, Ulrike Reichert, and Kate Miley for Nutricia North America. The music featured in this episode is Look Inside by Sirus Music, and Sunbang by Elephant Music.
Always consult your metabolic healthcare professional team prior to making any changes to diet or condition management.
© 2021 Nutricia North America