{"id":8964,"date":"2025-02-26T14:31:59","date_gmt":"2025-02-26T19:31:59","guid":{"rendered":"https:\/\/www.nutriciametabolics.com\/?p=8964"},"modified":"2025-05-21T01:57:29","modified_gmt":"2025-05-21T05:57:29","slug":"blog-stephanies-story-returning-to-diet","status":"publish","type":"post","link":"https:\/\/www.nutriciametabolics.com\/en-us\/blog\/stephanies-story-returning-to-diet\/","title":{"rendered":"Stephanie&#8217;s Story: How I Took My Power Back &amp; Returned to Diet"},"content":{"rendered":"\r\n<figure class=\"wp-block-image aligncenter size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"800\" src=\"https:\/\/www.nutriciametabolics.com\/wp-content\/uploads\/2025\/02\/Stephanie-Blog-Image.jpg\" alt=\"\" class=\"wp-image-8975\" style=\"width:476px;height:auto\"\/><\/figure>\r\n\r\n\r\n\r\n<h2 class=\"wp-block-heading\"><strong>How it All Started<\/strong><\/h2>\r\n\r\n\r\n\r\n<p>I&#8217;m Stephanie, 42 years old, and I have <a href=\"\/en-us\/pku\/\" target=\"_blank\" rel=\"noreferrer noopener\"><strong>classic PKU<\/strong><\/a> that was managed early. My PKU childhood was uneventful. My phenylalanine (PHE) levels only increased when I was ill or when I secretly snacked on \u201cno-go\u201d foods. My mom was fantastic and taught me to pay constant attention to my food. To the point that even as a young child, I knew to refuse treats I wasn&#8217;t allowed to eat.<\/p>\r\n\r\n\r\n\r\n<p>That being said, I probably didn&#8217;t have it as difficult as other PKU children (everyone&#8217;s tolerance is different) because mine was 800 mg phenylalanine (PHE) per day.<strong><\/strong><\/p>\r\n\r\n\r\n\r\n<h2 class=\"wp-block-heading\"><strong>My Rebellious Teen Years<\/strong><strong><\/strong><\/h2>\r\n\r\n\r\n\r\n<p>After years and years of managing my PKU successfully, my doctor told me that I could get a bit more relaxed with my diet. My teenage brain took this to mean I didn&#8217;t need to think about it as often and could get away with making rough estimations.<\/p>\r\n\r\n\r\n\r\n<p>And so, <em>my <\/em>downward dietary spiral slowly began. I was a vegetarian at the time and started by &#8220;cheating&#8221; with the occasional dairy product. To top it off, I no longer took any PKU formula. I thought I was fine. I had nothing to worry about. My PHE levels remained within the recommended range for adults, even below 15 mg\/dL PHE in the blood.<\/p>\r\n\r\n\r\n\r\n<p>Everything seemed to be going well. I did my regular blood tests and went to the metabolic clinic once a year. I was okay with this way of eating. No nutritional deficiencies were found, and I had no difficulty concentrating or headaches.<\/p>\r\n\r\n\r\n\r\n<h2 class=\"wp-block-heading\"><strong>Marriage and a Baby<\/strong><\/h2>\r\n\r\n\r\n\r\n<p>I got married at the age of 23 and immediately knew that I wanted to have children. Which meant I had to get back on the PKU diet.<a href=\"\/en-us\/pku-pregnancy-what-to-expect\/\" target=\"_blank\" rel=\"noreferrer noopener\"> <strong>Learn more about PKU and Pregnancy<\/strong><\/a><\/p>\r\n\r\n\r\n\r\n<p>I spent around eight weeks getting into the swing of things and had no issues with my low-protein diet and drinking my PKU formula. I was all in, knowing that I was doing it for my soon-to-be baby.<\/p>\r\n\r\n\r\n\r\n<p>My daughter was born healthy in 2001<strong>. <\/strong>Straight after, I&nbsp;fell back into my old diet patterns when I was eating everyday foods that were as low in protein as possible &#8211; at least initially.<\/p>\r\n\r\n\r\n\r\n<h2 class=\"wp-block-heading\"><strong>I Felt Like I Was Invincible!<\/strong><\/h2>\r\n\r\n\r\n\r\n<p>As life got more hectic (raising a baby is a lot of work), I started making more exceptions, having more excuses to eat bits of meat, cheese-loaded pizzas, yogurt, and normal bread and pasta. Somehow, despite my cheating, I managed. My PHE-levels remained below 20mg\/dL.<\/p>\r\n\r\n\r\n\r\n<h2 class=\"wp-block-heading\"><strong>The Bad!<\/strong><\/h2>\r\n\r\n\r\n\r\n<p>After a couple of months of eating (basically) whatever I wanted, I started getting tired. Not just &#8220;yawn tired\u201d, I got &#8220;dead in my bones&#8221; tired, &#8220;feel like you&#8217;re melting&#8221; tired. I struggled to get out of bed and couldn&#8217;t complete the simplest tasks, even after having slept for 8 hours.<\/p>\r\n\r\n\r\n\r\n<p>All I focused on was pushing through my half-day job for the sake of my family. By lunchtime, I got home and collapsed. I would sleep and sleep and still felt exhausted. By 5 pm, I needed ANOTHER nap.<\/p>\r\n\r\n\r\n\r\n<p>Once we had dinner and relaxed by watching TV, I would pass out on the couch till bedtime. I would then fall into my bed and sleep through the night. My family used to tease me about it all the time which got me quite upset because a tired, drained mother and wife is not who I am.<\/p>\r\n\r\n\r\n\r\n<p>I kept making excuses for my exhaustion, from blaming my work stress and household chores to putting my tiredness down to the pressures of raising a child. But even on holidays, when I had very few responsibilities, I just felt utterly broken.<\/p>\r\n\r\n\r\n\r\n<p>So, I had my blood checked, and despite my exhaustion, all values were within normal limits. I got a measuring device to monitor my breathing and sleeping to see if it could be sleep apnea. People with sleep apnea stop breathing during intervals at night &#8211; so they don&#8217;t sleep properly &nbsp;and are tired all day &#8211; still nothing. My breathing was fine. I knew something was up.<\/p>\r\n\r\n\r\n\r\n<p>At my next metabolic clinic appointment, I mentioned my fatigue, but was pretty ashamed so I underplayed the severity of it to my doctors They told me to keep an eye on it, not knowing how bad it had gotten. Deep down, I knew it had something to do with my protein intake.<\/p>\r\n\r\n\r\n\r\n<p>That appointment was a bit of a wake-up call. I half-heartedly started paying more attention to the food I was eating, cutting out protein, and taking my PKU formula again.<\/p>\r\n\r\n\r\n\r\n<h2 class=\"wp-block-heading\"><strong>I Realized; This is Madness<\/strong><\/h2>\r\n\r\n\r\n\r\n<p>After struggling through my days, something switched in my brain. I realized what I was doing to myself was INSANE. I couldn&#8217;t carry on like this anymore. I attended a PKU information day at<strong> <\/strong>the Hannover Medical School, where I saw a film called &#8220;The Forgotten Children&#8221; that hit me right in <em>my <\/em>heart. Yes, when I was young and fit, I could mess around a bit &#8211; but I realized my excessive protein intake would profoundly affect my lifestyle and mental faculties as I got older. I was heading down a dangerous path, and I needed to make a change before it was too late.<\/p>\r\n\r\n\r\n\r\n<figure class=\"wp-block-image aligncenter size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"640\" height=\"217\" src=\"https:\/\/www.nutriciametabolics.com\/wp-content\/uploads\/2025\/02\/Stephanie-Blog-Quote.jpg\" alt=\"\" class=\"wp-image-8979\"\/><\/figure>\r\n\r\n\r\n\r\n<h2 class=\"wp-block-heading\"><strong>My A-HA Moment<\/strong><\/h2>\r\n\r\n\r\n\r\n<p>I started researching on the internet what was new on the market regarding <a href=\"\/en-us\/shop\/category\/pku-formulas\" target=\"_blank\" rel=\"noreferrer noopener\"><strong>PKU fo<\/strong><\/a><a href=\"https:\/\/www.nutriciametabolics.com\/shop\/category\/pku-formulas\"><strong>rmula<\/strong><\/a> and low-protein foods. I ordered <a href=\"https:\/\/www.nutriciametabolics.com\/shop\/samples\" target=\"_blank\" rel=\"noreferrer noopener\"><strong>sa<\/strong><\/a><a href=\"\/en-us\/shop\/samples\"><strong>mples<\/strong><\/a> from various companies, tried everything, and finally informed the team at the metabolic clinic about my decision to go back on a &#8220;real&#8221; PKU diet. They gave me sensible and practical nutritional advice that helped me get back on top of my work, life, and energy again. I also received help and support from other PKUers and the <strong><a href=\"https:\/\/www.facebook.com\/NutriciaMetabolicNutrition\" target=\"_blank\" rel=\"noreferrer noopener\">Nutricia Metabolics community<\/a>. <\/strong>I couldn&#8217;t have done it without them!<\/p>\r\n\r\n\r\n\r\n<h2 class=\"wp-block-heading\"><strong>My Comeback-A New Attitude to Life<\/strong><\/h2>\r\n\r\n\r\n\r\n<p>I had the will, and I learned the way, so I just started, and I succeeded! My goal was to get my PHE levels below 10 mg\/dL. I achieved that and have been able to maintain it for two years now. What&#8217;s even better, my tiredness is gone! l&#8217;m awake and alert, I\u2019m no longer mentally depressed, and I&#8217;m interested in hobbies and activities again. I have gained my quality of life back, which is all the motivation I need to keep going &nbsp;I never want to go back to being that miserable person again.<\/p>\r\n\r\n\r\n\r\n<h2 class=\"wp-block-heading\"><strong>You Can Do It!<\/strong><\/h2>\r\n\r\n\r\n\r\n<p>Getting back into a low-protein diet is easier than you think. <a href=\"\/en-us\/returning-to-the-pku-diet\/\" target=\"_blank\" rel=\"noreferrer noopener\"><strong>Watch Renee\u2019s Story<\/strong><\/a> to learn how he returned to diet as well. Do you\u00a0 need to make a comeback or know someone who does? The Nutricia Metabolics team is ready to support your return to a low-protein diet. Get started by visiting our Low-Pro Living blog for a variety of resources and tips.<\/p>\r\n\r\n\r\n\r\n<figure class=\"wp-block-image aligncenter size-full\"><a href=\"\/en-us\/shop\/pku\" target=\"_blank\" rel=\"noreferrer noopener\"><img loading=\"lazy\" decoding=\"async\" width=\"624\" height=\"390\" src=\"https:\/\/www.nutriciametabolics.com\/wp-content\/uploads\/2024\/01\/PKU-Product-Portfolio.png\" alt=\"\" class=\"wp-image-8527\" srcset=\"https:\/\/www.nutriciametabolics.com\/en-us\/wp-content\/uploads\/2024\/01\/PKU-Product-Portfolio.png 624w, https:\/\/www.nutriciametabolics.com\/en-us\/wp-content\/uploads\/2024\/01\/PKU-Product-Portfolio-300x188.png 300w\" sizes=\"auto, (max-width: 624px) 100vw, 624px\" \/><\/a><\/figure>\r\n\r\n\r\n\r\n<p class=\"has-small-font-size\">The views\/opinions presented are solely those of the individual and do not necessarily represent those of Nutricia. Always consult with your Metabolic Healthcare Professional before making any changes to your diet.<\/p>\r\n\r\n\r\n\r\n<p class=\"has-small-font-size\">Brought to you by Nutricia North America. Copyright 2025 All rights reserved.<\/p>\r\n","protected":false},"excerpt":{"rendered":"<p>How it All Started I&#8217;m Stephanie, 42 years old, and I have classic PKU that was managed early. My PKU childhood was uneventful. My phenylalanine (PHE) levels only increased when I was ill or when I secretly snacked on \u201cno-go\u201d foods. My mom was fantastic and taught me to pay constant attention to my food. [&hellip;]<\/p>\n","protected":false},"author":1001,"featured_media":8975,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"wprm-recipe-roundup-name":"","wprm-recipe-roundup-description":"","site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"default","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[125],"tags":[405,801,404],"class_list":["post-8964","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-inspiring-stories","tag-adults","tag-pku","tag-returning-to-diet"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\r\n<title>Stephanie&#039;s Story: How I Took My Power Back &amp; Returned to Diet - Nutricia Metabolics North America \u2013 Products &amp; Support<\/title>\r\n<meta name=\"description\" content=\"Discover Stephanie&#039;s journey of overcoming PKU challenges, &amp; embracing a low-protein diet for a better quality of life.\" \/>\r\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\r\n<link rel=\"canonical\" href=\"https:\/\/www.nutriciametabolics.com\/en-us\/blog\/stephanies-story-returning-to-diet\/\" \/>\r\n<meta property=\"og:locale\" content=\"en_US\" \/>\r\n<meta property=\"og:type\" content=\"article\" \/>\r\n<meta property=\"og:title\" content=\"Stephanie&#039;s Story: How I Took My Power Back &amp; Returned to Diet - Nutricia Metabolics North America \u2013 Products &amp; Support\" \/>\r\n<meta property=\"og:description\" content=\"Discover Stephanie&#039;s journey of overcoming PKU challenges, &amp; embracing a low-protein diet for a better quality of life.\" \/>\r\n<meta property=\"og:url\" content=\"https:\/\/www.nutriciametabolics.com\/en-us\/blog\/stephanies-story-returning-to-diet\/\" \/>\r\n<meta property=\"og:site_name\" content=\"Nutricia Metabolics North America \u2013 Products &amp; 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