{"id":7366,"date":"2021-11-17T10:37:53","date_gmt":"2021-11-17T15:37:53","guid":{"rendered":"https:\/\/www.nutriciametabolics.com\/?p=7366"},"modified":"2025-06-20T02:35:37","modified_gmt":"2025-06-20T06:35:37","slug":"blog-caring-for-rare-podcast-season-1-episode-2","status":"publish","type":"post","link":"https:\/\/www.nutriciametabolics.com\/en-us\/blog\/caring-for-rare-podcast-season-1-episode-2\/","title":{"rendered":"Caring for Rare Podcast: Season 1, Episode 2"},"content":{"rendered":"\n

Growing up with MSUD – an interview with 8-year-old Carter Coleman & his parents<\/h2>\n\n\n\n
\"Podcast
Carter (right) and his parents Andre and Jordann<\/figcaption><\/figure>\n\n\n\n

Nutricia North America\u2019s new podcast \u2013 Caring for Rare \u2013 explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families\u2019 personal stories of inborn errors of metabolism. Our guests on the show share their difficulties at diagnosis, changes they made to adapt to condition management, everyday joys, and more.<\/p>\n\n\n\n

Though these disorders are rare, it is possible to find community and support. We hope you\u2019ll feel comfort and connection in the stories of Caring for Rare.<\/p>\n\n\n\n

In this episode, an eight-year-old living with MSUD named Carter and his parents open up about their experiences with this rare inborn error of metabolism. Mom and dad, Jordann and Andre, discuss coming to terms with diagnosis, watching Carter reach important milestones, and what they appreciate most about Carter, who looks forward to playing football, having a house one day, and continuing to \u201cdo fun stuff!\u201d<\/p>\n\n\n\n

Listen now, or find Caring for Rare on Apple<\/strong><\/a>, Google Podcast<\/strong><\/a>, Amazon music<\/strong><\/a> and other podcast hubs! <\/h2>\n\n\n\n
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